This training will ensure staff working in health and social care receive learning disability and autism training, at the right level for their role. They will have a better understanding of people’s needs, resulting in better services and improved health and wellbeing outcomes.
Where did it come from?
In November 2019, the Government published 'Right to be heard' its response to the consultation on proposals for introducing mandatory learning disability and autism training for health and social care staff.
The response included a commitment to develop a standardised training package. The training will draw on existing best practice, the expertise of people with autistic people, people with a learning disability and family carers as well as subject matter experts.
HEE and Skills for Care are co-ordinating the development of training in both health and social care. The training is being co-produced and delivered by autistic people, people with a learning disability and family carers. If you want to find out more, please email firstname.lastname@example.org
Why is it called The Oliver McGowan Mandatory Training?
The training is named after Oliver McGowan, whose death shone a light on the need for health and social care staff to have better training.
You can watch our four partner presentations from our February 2021 stakeholder event and videos shown by trial partners Mencap and NAS below. The films reflect autistic peoples experiences when making an appointment with a GP. Also listed below is the full recording of our 6 July stakeholder event and an opening video from Dr Amir Khan.
A recording of the 1st December stakeholder event can be found here.
Next stakeholder event and final evaluation report
The next stakeholder event has been delayed until 25 May 2022. This is because local elections will shortly be taking place across the UK and we need to respect a period when official bodies pause from making announcements.
If you have already registered for the event, there is no need to register again. If you have not already registered, you can sign up below and we will send you information as soon as it is available.
Register here for the next stakeholder event: 25/05/22, 10am - 12 noon (new date). This event will be a celebration of how far we have come and our evaluation partners NDTi will present findings from the final evaluation report - which will help to shape the rollout of the Oliver McGowan Mandatory Training in Learning Disability and Autism. This event is open to everyone. Registrations will close for this event on Wednesday 11 May 2022.
Related videos are now listed below:
- British Institute of Learning Disabilities (BILD)
- Royal Mencap Society / National Autistic Society
- Gloucestershire Health and Care NHS Foundation Trust
- Pathways Associates Community Interest Group
- NAS - Doctor's receptionist
- NAS - GP Surgery visit
- Mencap - Meet Claire
- Mencap - Meet Caydon
- The Oliver McGowan Mandatory Training in Learning Disability and Autism public stakeholder event - 6 July 2021
- Stakeholder event opening video from Dr Amir Khan - 18 August 2021
Following our latest stakeholder event in July 2021 and your feedback we have now updated our Frequently Asked Questions.
The Interim Report for the Oliver McGowan Mandatory Training in Learning Disability and Autism Trial
Independent Evaluator NDTi has published its interim report of the progress of The Oliver McGowan Mandatory Training in Learning Disability and Autism Trial (November 2021). The report describes the progress so far and shares some of the early insights at this early stage of the trial.
We’d also like to ask those people who have attended the trial training to complete the last and final survey, which will only take about 10 minutes. Paula McGowan OBE has sent out a note via the trial partners which can be found here with the link.
The impact of COVID-19 in the North-West means that unfortunately Pathways Associates CIC will not be able to continue their work as a trial partner developing the Oliver McGowan Mandatory Training for Learning Disabilities and Autism. Pathways, Health Education England and Skills for Care have agreed that Pathways will therefore stop work on the development of their training and not progress into the delivery phase of the trial. This is the nature of the trial and not to be considered a failure in any way.
Pathways have worked intensively to co-produce training with their experts by experience and will continue to work together with HEE and Skills for Care over the next few months to ensure the learning and contribution the Pathways collaboration have made, up to this point, can add maximum value and impact for the Oliver McGowan Mandatory Training, which continues to be delivered and evaluated.
We look forward to working together on future opportunities.
Oliver's training is about awareness and understanding and does not include training about treatments or specific interventions. It will give staff the right skills to ensure people with a learning disability and autistic people have positive health and social care outcomes.
The Oliver McGowan Mandatory Training will be co designed and co delivered by autistic people, people with a learning disability, family carers and subject matter experts. It includes face-to-face delivery and blended learning approaches.
The content is based on the Capabilities Framework for Supporting People with a Learning Disability and the Capabilities Framework for Supporting Autistic People. See the capabilities frameworks.
These frameworks identify the different tiers of skills and knowledge staff need to support people. They were developed with autistic people and people with learning disabilities including their families of all ages.
There are two frameworks as learning disability and autism are different and social care and health staff need to clearly understand this. They share a similar format to make it as straight forward as possible for workers and employers to use.
Each framework has 3 tiers, each tier refers to a defined target audience:
- Tier 1 – People who require a general understanding of autism, and learning disabilities, and the support people may need
- Tier 2 – People with responsibility for providing care and support (for an autistic person or people, and / or people who have a learning disability) but who could seek support from others for complex management or complex decision-making
- Tier 3 - Health, social care staff and other professionals with a high degree of autonomy, able to provide care and support in complex situations and/or may also lead services for autistic people / people who have a learning disability.
What is involved?
Four partners have been appointed to co-produce and co-deliver the training in a trial for groups of health and social care staff. An independent evaluation will be co-produced to report on the impact of the training, identify the most appropriate content material and delivery methods and the cost implications for the wider rollout. The Oliver McGowan Mandatory Training will include tiers 1 and 2 capabilities.
Who is involved?
The Oliver McGowan Mandatory Training will include tiers 1 and 2 capabilities.
A panel which included: autistic people, people with learning disabilities and family members representing interest groups; representatives from HEE; Skills for Care; the Department of Health and Social Care; the Local Government Association and NHS England and NHS Improvement have selected the following organisations as trial partners:
Trial and evaluation partners are each leading a consortium of diverse groups and networks involving 51 organisations.
Skills for Care are coordinating all enquiries about the trials and evaluation, on behalf of the Department of Health and Social Care, and Health Education England. If you have a question, please contact: email@example.com
HEE’s procurement processes were used to appoint the trial and evaluation partners. Every stage in the procurement process included the direct involvement of autistic people, people with learning disabilities and their families as well as professional expertise.
All bids were assessed and scored against published criteria. Only bids which met the quality standard were invited to the interview stage with the panels. There were separate panels for the trials the evaluation bids. Each panel included: autistic people, people with learning disabilities and family members representing interest groups; representatives from HEE; Skills for Care; the Department of Health and Social Care; the Local Government Association; NHS England and NHS Improvement.
Each partner is required to ensure that autistic people, people with a learning disability and family carers are involved in every stage of the trials and must be appropriately remunerated for their work.
Once The Oliver McGowan Mandatory Training trial is complete the Department for Health and Social Care will use the evaluation to inform a wider rollout of the training.
Strategic Oversight Group
The Strategic Oversight Group provides high level, oversight, quality assurance and leadership for the Oliver McGowan Mandatory Learning Disability and Autism Training programme. It is responsible for managing the delivery of the programme, including decisions relating to the day-to-day running and development of the programme.
The membership includes representatives from the Voluntary and Community Sector, Experts-by-Experience, family members, Department of Health and Social Care, Health Education England and Skills for Care.
The Strategic Oversight Group met in December and agreed the trial can be extended by six months to allow COVID safe delivery of face-to-face training. The additional time means the evaluation is now due in February 2022.
The stakeholder forum is a regular open meeting where we can meet with interested groups and organisations to share updates, respond to questions and hear the voices of stakeholders. The first Oliver McGowan Mandatory Training Stakeholder Forum met on Monday 14 December 2020.
Paula McGowan told the group how the training came about and why it is named in memory of her son Oliver McGowan. There was an introduction from Health Education England showing how the trials will work, and how autistic people and people with learning disabilities are co-producing at each stage. The National Development Team for Inclusion, the organisation leading the evaluation, presented their approach and who will be involved.
The team then responded to questions raised prior to and in the meeting. The full list of Questions and Answers are published on this page.
At the February meeting the four partners developing and trialling the training gave an update of their work so far and their presentations can also be found on this page. We also provided another update on 6th July from our partners and evaluation partners NDTi and there are a number of videos included on this page, including one from Dr Amir Khan who opened up the forum.
The next stakeholder event is planned for 1st December 2021. This event is open to everyone and the registration link is here.