End of life care
Our work on end of life care (EoLC) has been driven by our commitment to implement the workforce related recommendations in the ‘One Chance to Get it Right’ publication, produced by the Leadership Alliance for the Care of Dying People in June 2014.
This coalition of 21 members from across the healthcare sector, including HEE, was commissioned in 2013 by the Department of Health to produce a system-wide written response to the Independent Panel Review of the Liverpool Care Pathway led by Baroness Neuberger.
The Leadership Alliance set out its vision of what good care in the last days to hours should include in One Chance to Get it Right, in the form of five Priorities for Care of the Dying Person.
- the possibility that a person may die within the coming days and hours is recognised and communicated clearly, decisions about care are made in accordance with the person’s needs and wishes, and these are reviewed and revised regularly
- sensitive communication takes place between staff and the person who is dying and those important to them
- the dying person, and those identified as important to them, are involved in decisions about treatment and care
- the people important to the dying person are listened to and their needs are respected
- care is tailored to the individual and delivered with compassion – with an individual care plan in place.
Workforce education and training – review into end of life care resources
One of our commitments in the One Chance to Get it Right document was to conduct research into the development and evaluation of education and training methods and programmes which addressed uncertainty and communication when caring for the dying.
Given the wealth of guidance, tools and education and training materials being used by NHS staff, HEE commissioned The Democratic Society to review the efficacy of existing education and training resources on end of life care for the NHS workforce in March 2015.
The review was a deep dive exercise to establish what types of education and training resources help deliver high quality care for the dying. Research was comprised of both quantitative and qualitative methods: a survey focused on frontline NHS staff and qualitatively a series of focus groups across England; interviews with health experts from professional bodies and two national workshops aim at NHS and social care professionals.
The review completed its research phase in July 2015 and has now produced a report for HEE. The review has informed HEE’s local action plan, which will promote and embed those education and training resources which drive high quality outcomes for staff and patients.
System wide approach
The One Chance to Get It Right document was a system wide response to the Liverpool Care Pathway Review and HEE’s approach to implementation at a national level is to collaborate with partner ALBs, namely NHS England and Public Health England, on end of life care wherever possible and integrate outputs from workstreams to ensure the system supports a holistic approach to end of life care.
HEE is a member of The National Palliative and End of Life Care Partnership, made up of statutory bodies including NHS England, the Association of Adult Social Services, charities and groups representing patients and professionals. Visit the partnership website for more information on its work.
This partnership has developed a framework for action in making palliative and end of life care a priority at local level ‘Ambitions for Palliative and End of Life Care: A national framework for local action 2015-2020’, which is aimed at local health and social care and community leaders. Published in August 2015, it builds on the Department of Health’s 2008 Strategy for End of Life Care and responds to an increased emphasis on local decision making in the delivery of palliative and end of life care services since the introduction of the Health and Social Care Act 2012.
As part of the Ambitions Partnership, a new End of Life Care (EoLC) Knowledge Hub has been launched which acts as a ‘one stop shop’ for palliative and EoLC information. This hub provides anyone involved in the commissioning or provision of palliative and end of life care with a quick and easy way to source information, including helpful tools and resources to drive delivery of the Ambitions for Palliative and End of Life Care – a national framework for local action.
Prof Bee Wee, NHS England’s National Clinical Director for End of Life Care had this to say about the website: “One of the strongest messages that came out of developing the Ambitions Framework was the powerful and exponential effect of collaborative working. I am particularly pleased that we have been able to expand the Ambitions website to host this Knowledge Hub.
“Talking with my colleagues across England, I know they welcome it as a central repository for resources to use and to share. As we all get busier in our daily lives, great ideas and examples of innovation can go unnoticed; people can end up reinventing the wheel at a time when we need to be ever more efficient and effective in sharing our limited resources, so I hope the spirit of collaboration and willingness to learn from each other will persevere through this Hub.”
Expansion of the Ambitions website was commissioned by NHS England and taken forward by the National Council for Palliative Care, one of the Ambitions partners.
A cross-sector stakeholder group was established to oversee the transition of national documents, leaflets, booklets, policies and educational resources. Decisions made were based on validity, reliability, value and relevance to the Ambitions framework.
Early next year, professionals will be able to submit resources they would like to see available on the knowledge hub for assessment against robust criteria to ensure the site remains current and appropriate for users.
Since the publication of the strategy, good progress has been made in end of life care but there is still much more that needs to be done. Research by Hospice UK and the National Council for Palliative Care, carried out last year showed that only around four in ten (43%) Health and Wellbeing Boards in England include the needs of dying people in their key strategies that shape health and social care services. This is why HEE will implement the One Chance to Get It Right and review recommendations through a local action plan, so that employers are clear about workforce development and continuing personal development needs of NHS staff.
End of Life Care for All e-learning programme
Further information on our work on the End of Life Care for All e-learning programme can be found here.
End of Life Care Core Skills Education and Training Framework
Health Education England, Skills for Health and Skills for Care and have been working in collaboration to refresh the previous Common Core Principles and Competences for Social Care and Health Workers Working with Adults at the End of Life (2014) and develop these into an End of Life Care Core Skills Education and Training Framework. Once developed, this framework will sit under a person centred care framework and alongside the Dementia, Mental Health and Learning Disabilities frameworks.
Further information about the project is available here.